Miss Ella Claire
 
June 7th, 2018 Ella Claire was diagnosed with Stage 4 Alveolar Rhabdomysarcoma (ARMS). She went through her 54 weeks of treatment, and just as we were hopeful our ending was near, the cancer returned. August 27th, 2019 we found out that Ella Claire now has tumors in her right lung. She is now starting a new treatment. We will use this blog to help keep all her family, friends, and loving support system updated.
 
 
If you would like to give to the family, you can do so by going to the “Give” tab above through the Secure Online Portal (You can give as GUEST) or give through PayPal, please put Ella Claire in the notes section. You can also use their personal PayPal, lorilykennedy@gmail.com.
 
 

Thank you ALL for your Prayers, Love, and Support you have all shown to this Precious family thus far on their journey!

 
If you would like to signup for Email Updates for Miss Ella Claire’s Blog, you can do so here or at at the bottom of this blog page. Also, please click on the title of the blog post for the full post, as well as being able to leave the family a word of encouragement or comment.

1/13 Update

On Monday we met with the surgeon to discuss Ella Claire’s options. The surgery to repair her hip fracture is scheduled for Tuesday, Jan. 28.

Ella Claire’s regular clinic is every two weeks now instead of weekly. Her next visit is Jan 21.

Prayers for Ella Claire’s health to hold leading up to surgery; for the surgeon and his team; for recovery from the procedure.


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Clinic Visit – January 7, 2020

Tuesday was a loooooong day in the clinic. Ella Claire’s lab work showed that her counts are still good. There is still some lingering affects of the flu but mending well. One of the reasons for weekly clinic visits is to drain the area around her lungs. 150 ML (5 oz) were drained so she will not have to have that done again until 1/21. The short term goal is to drain every 2 weeks.
 
We continue to be grateful for the wonderful resource of Children’s Hospital as well as the kind attention and skills of all the staff who care for Ella Claire.

 

#NewYearNewBlessings
#FOCUSonwhatsoeverisgood
 
To view previous blog post, click HERE.

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January 6, 2020

Hello, 2020! 2019 concluded with lots of fireworks at Disney World! Our family had a wonderful time exploring the parks and just being together. Ella Claire had lots of attention and certainly maintained her Princess status among the Disney originals! We were glad to be back home although one of our souvenirs was the flu. Cade and Ella Claire came down with it a couple days after returning. Dan and Ella Claire went to Children’s for 4 days; mom and Cade hunkered down at the house. Everyone got through it in time to celebrate our extended family Christmas on Saturday (1/4)!
 
Prior to the trip, Ella Claire began to complain while walking. Xrays showed a fracture in the growth plate in her hip due to the radiation treatment earlier this year. Surgery to repair is scheduled for Jan. 28. Consult for this surgery is Monday, Jan. 13. We ask for wisdom as we listen to the doctors and make decisions regarding the surgery.

 

The current chemo is showing signs of being effective on the tumors in her lung. The last scan showed signs of the tumors being smaller. Ella Claire continues her weekly visits to the clinic on Tuesdays to have fluid drained from around her lungs and lab work.

 

Not being able to walk is frustrating at times for Ella Claire which affects her overall outlook. We are readjusting to our daily routine after our Disney trip and Christmas celebrations. Sometimes a normal routine is just what the dr. ordered!
 
Specific ways to pray:
*for wisdom regarding the upcoming surgery consultation
*for continued chemo regiment to be effective
*for strength, protection, and peace for Lori, Dan, Addison, Baylee, Cade, and Ella Claire.

 

#NewYearNewBlessings
#FOCUSonwhatsoeverisgood
 
To view previous blog post, click HERE.

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WE ARE GOING TO DISNEY!!

We are super excited and beyond thankful!!! Make~A~Wish has granted Ella Claire’s wish for us all to go to Disney World. We will be going December 17th~23rd. We can not wait to see all of the Christmas lights and decorations, meet the characters, and just have a week to make amazing family memories. I’m personally most excited to watch all four of our children have an adventure and experience the magic of Disney! Today we had a celebration with our Make~A~Wish volunteers, who are fabulous, where we all found out that we were going and all of the exciting details. Here are some of the pictures from today.
 
 
 
To view previous blog post, click HERE.
 

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