Miss Ella Claire
 
June 7th, 2018 Ella Claire was diagnosed with Stage 4 Alveolar Rhabdomysarcoma (ARMS). She went through her 54 weeks of treatment, and just as we were hopeful our ending was near, the cancer returned. August 27th, 2019 we found out that Ella Claire now has tumors in her right lung. She is now starting a new treatment. We will use this blog to help keep all her family, friends, and loving support system updated.
 
 
If you would like to give to the family, you can do so by going to the “Give” tab above through the Secure Online Portal (You can give as GUEST) or give through PayPal, please put Ella Claire in the notes section. You can also use their personal PayPal, lorilykennedy@gmail.com.
 
 

Thank you ALL for your Prayers, Love, and Support you have all shown to this Precious family thus far on their journey!

 
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Three Days In…

Well after three days of being on the new treatment/medicine, so far so good. She does not like taking the medicine, but what two year old does right?! HA! Our little Warrior Princess is still her sassy, fun, energetic, DIVA self! We are so thankful she’s still acting like herself so far and we are just going to keep taking it one day at a time and LOVING EVERY precious moment we can!

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Having fun


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Ending of Day 1

Miss Ella Claire has had a long day There’s more fluid around her lung even just from last week. Still went ahead and started the new chemo, since she’s not having any trouble breathing or anything like that. Said the medicine may help some with it but not sure until we start it. If we still have a lot of fluid they can pause medicine and drain fluid. May possibly have to put a chest tube in to keep it drained depending on how quickly the fluid comes back/continues. So still starting medicine today and it will be also given at home. If we notice any difference in her breathing then we will go ahead and do the draining.

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Day 1

This is a blog that we will be adding to often to keep everyone up to date with things going on in Miss Ella Claire’s treatment.
They had to be at Children’s at 7:00am on Tuesday morning for a CT Scan of her abdomen and then blood work, after which she will receive her first chemo treatment of the new medication. This will be an all day event due to blood work 4 hours and then 2 hours after Chemo.

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