Miss Ella Claire
 
June 7th, 2018 Ella Claire was diagnosed with Stage 4 Alveolar Rhabdomysarcoma (ARMS). She went through her 54 weeks of treatment, and just as we were hopeful our ending was near, the cancer returned. August 27th, 2019 we found out that Ella Claire now has tumors in her right lung. She is now starting a new treatment. We will use this blog to help keep all her family, friends, and loving support system updated.
 
 
If you would like to give to the family, you can do so by going to the “Give” tab above through the Secure Online Portal (You can give as GUEST) or give through PayPal, please put Ella Claire in the notes section. You can also use their personal PayPal, lorilykennedy@gmail.com.
 
 

Thank you ALL for your Prayers, Love, and Support you have all shown to this Precious family thus far on their journey!

 
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Weekly Update

Just wanted to give a little update 🙂
Ella Claire has really had a pretty good week. Her nurse is WONDERFUL and comes to see her twice a week. Both times she said that Ella Claire sounded great. Her clinic visit Tuesday went well also. They did not drain as much as we had drained at a time last week, they did an x-ray to make sure nothing was clogged and all was great. She was able to make it half way through her dance class this week before the drain tube started to bother her, that’s actually a plus. She’s learning how to maneuver with it and it is not slowing her down much at all! I’ve learned to just wake up each day not expecting anything and taking it all just one day at a time.

If you would like to view previous post, click Miss Ella Claire’s Blog Update.


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Saturday

It has been so nice being home from the hospital! Ella Claire was still pretty tired yesterday but that was to be expected. This morning she woke up super happy and was in great spirits mostly all day. Ella Claire has laughed and played and enjoyed some visitors as well! Thank you all for your prayers! I know I myself could not make it without,

If you would like to view previous post, click Miss Ella Claire’s Blog Update.


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Late Thursday Update …

Wanted to let everyone know, Miss Ella Claire is now at home! Thank you again to everyone for all the prayers this week. Please continue praying for her, pain from the surgery and still a slight cough. We will have comfort care nurses coming to help keep a check on her in between Tuesday Children’s Hospital visits.

We can’t thank everyone enough for all the prayers and love shown to our family during this past week and throughout this past year. Please continue to hold us up in your prayers.

If you would like to view previous post, click Miss Ella Claire’s Blog Update.


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Mid Week Update

Just wanted to give an update on Miss Ella Claire. She slept much better last night and woke up on her own this morning a little happier, more like her usual self. Dan and I did learn how to and actually did the draining yesterday and it went well. We will have someone come and “oversee” us doing that again today as well. For now our plan is to make sure her pain is kept under control and spacing her pain meds out farther today and to make sure we are both comfortable with the fluid draining process. She is napping now, we are just letting her do her own thing of what and when she’s wanting to eat, sleep, and play. Just help us to continue to pray for her and that she can come off of the IV pain meds soon for us to be able to go back home.
Love to All~ Lori 🙂

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